Latest Posts (20 found)
ava's blog Yesterday

my data should not be your cookie jar

It’s 1970. You walk into the store, grab a bunch of apples, go to the cash register, pay with cash, and walk out. What kinds of data have been automatically processed about you while doing that? Very little. Most likely, none, as CCTV footage relied on the development of VHS to be viable, and IP cameras transmitting video over networks only took off in the 90s. Fast forward to today. Depending on where you live, your supermarket has good cameras everywhere; some, like the super fancy new experiments, have recognition technology that detects what items you grab so that you can just pay without scanning, or even just walk out, having it subtracted automatically from your account. This isn’t just Amazon stores; German store Rewe is trying to get into that too, as I know someone personally who works in their sub-company Lekkerland’s “Smart Store Rollout” department. A more mundane but very common thing for the big stores is tracking you with RFID technology: They track where you are and how long you stay at specific spots by using a network of fixed RFID readers via the RFID tag on the loyalty card or shopping cart (or the individual scanners Rewe offers nowadays!). By noting the time and location of each tag read, the system can create a map of your path and duration of stay within the store. Your supermarket might also have an app to get specific sales and offers. Mine, for a little period, even made it seem as if you could only buy specific products if you pay through their app instead. They dropped that after a while, but I’m sure it got many to download it and make an account - as, of course, you could not use it without one. At the checkout, you might opt for self-checkout now. I’ve seen that stores in the US distinctly record your face and your hands scanning the products, so in case you try to sneak something, they have clear proof and identification options. That video gets analyzed and stored for a while. Either way, you might use a loyalty card you signed up for with your real name and address to collect points or get a discount, tracking exactly what you bought, and you’ll likely pay via card. Your bank account has a bit more information about where you shop and when than if you had just withdrawn cash. If you’re like me, you also pay contactless via phone or watch, giving the processor like Google Pay or Apple Pay some info as well. All that for quickly getting something at the grocery store, something that would not have given the companies much meaningful data about you specifically even just 55 years ago. Of course, some of these things are avoidable and no one forces you to use apps, bank and loyalty cards, but still. These things are not presented as the data harvesters they are, but as convenience and a way to save money or time, targeting vulnerable groups the most. But why even go to the store? Maybe you live in a country with delivery options like Instacart and the like. One more service related to the groceries you buy that is an app, a user account. What if you can’t or don’t wanna cook? Just get a delivery via DoorDash, UberEats, Lieferando or the equivalent in your country. More data about you, and that’s just food. What if you aren’t buying apples at the grocery store, but you’re buying lamps, frames, or a new bed cover? Nowadays, you’d most likely either have a similar shop experience as in the grocery stores, or you’ll online shop on the company’s website or app, that may or may not also show ads and place tracking cookies or reads other data on your phone. They might get you with a 5% off coupon if you just sign up for their newsletter! So you do. Not many use a throwaway mail address or immediately unsubscribe. Now they have constant access to you and your attention if they want to, not just while you’re at their physical stores. A marketing email popping up at the right time creates desires and a suggestion to do some online window shopping, again creating data as you use their website or app. And then there’s the shipping companies… What about the news? You can still buy magazines and newspapers at the store and the corner shop/kiosk, or maybe those little newspaper vending machines that drop one if you put in a coin. But everything is moving to digital nowadays, saving waste and printing costs, so to read the same newspaper online, you have to either pay with your data or pay more than print used to cost, and even then, still pay with your data . Subscribing to the digital version or unlocking a single article via a one-time-payment still tracks you and still shows you ads on many, many news sites. And what do you pay for? If you’re unlucky, it is the same article copy pasted across 10 different newspapers, or a completely AI generated article with zero human effort. For comparison: Just buying the print at a coin vending machine leaves them completely in the dark about you. That was just normal . I notice this in all kinds of industries and parts of life now - it’s why everything now requires an app and a sign-up. Your local café, your hairdresser, your e-scooter. Hell, I even saw nailbiter nail polish now comes with an app. New washing machines and refrigerators are reporting back to their companies. Why is every place, every product company now accepted to be a data aggregation company as well? Why is my data the cookie jar that companies frequently get their hand stuck in while acting entitled? Hello, I already paid you, why are you not ashamed of your obvious greed? What tires me about all of this is that we are supposed to pretend this is all normal and as if it has always been that way, and pretend that this isn’t just double-dipping . I pay money, and then I also generate money with my data. In cases of the loyalty cards and discounts, you could say that there is a fair trade as the price gets lowered, but this is the minority. The majority of the time, we are tracked and profiled with no advantage for us, no compensation. And even if there is, and default pricing is higher if you don‘t share data, that ends up being financial discrimination and affects your choice significantly. As prices rise everywhere, paying with our data gets us almost no relief and is just an ever-growing additional income stream on the side for these companies. Despite having this pile of digital gold to pad their wallets, they still pretend that they have to raise prices all the time for all kinds of situations, and then never lower them when they resolve, as the profit of doing so and selling to advertisers and AI companies is concentrated at the top of the chain. Companies used to be fine selling via means that did not track and invade your life this hard, now we’re supposed to pretend these things are essential. Essential for what? More ads? More manipulation? Better sales numbers? More money for the CEO? They are not essential. We could drop 3/4ths of these mechanisms with no discernible changes to the user experience or product access. The reality is that literal essentials are gatekept by being subjected to this constant harassment and evaluation. How long until not complying with this surveillance regime downright hurts? When you cannot pay cash, or you cannot get into the store without scanning a QR code via their app for authentication, or pricing is personalized based on the profile they have about you - compiled with not just the store data, but other data they bought from data brokers? Your loyalty status, past purchases, your income information, credit score, propensity-to-pay algorithms, Meta social media info, …? Premium loyalty tiers where you ironically pay for more privacy? Predictive technology wrongfully classifying you as a high risk for stealing and banning you from the store? I’m tired of every niche jumping on this opportunity to be the next Cambridge Analytica. You are a hardware store, not a data broker company! I keep swatting your hand out of the jar, but you are just back in there every time I look. Reply via email Published 29 Nov, 2025

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ava's blog 2 days ago

job market websites suck

Both my wife and I are going through the annoying process of trying to search for new jobs. I’m still at my current one, but I want to see if something better is out there in the region we wanna move to. But it is absolutely nuts . How have these services not gone out of business? My experience, almost entirely the same across many websites like StepStone, Indeed, and more: And for what? So that you’ll make an account and give up all that data and get harassed via e-mail for information that is freely available on the company’s own career page! What are we doing? This is silly. Companies have already revealed that they hate and don’t consider the “Quick Apply” options these platforms offer, so what gives? And why are companies still using these slop platforms? It can’t be about getting more applicants, because these websites do anything they can to not show you the relevant job postings or information about them. If the search sucks, the preview is half-blurred and I can’t click on it without a pop-up urging me to make an account, you guessed it: I am actively discouraged from applying, prevented even, in many cases. I shouldn’t have to make an account with a third party just to even consider an employer! No, I will not create an account, and I will also not make a LinkedIn or Xing. These services are not helping anyone, they are leeches. They have an interest in keeping you on their site searching jobs for a long time, and that goal is antithetical to connecting you with potential employers quickly. Companies are better off advertising elsewhere and keeping it on their own website so all potential candidates can access it. It’s a bad look seeing you on these enshittified platforms. The way I have been coping with this job search is just using these websites to get a list of companies that have jobs in my niche and then researching them separately, using their own career pages and application portals. Also, relying on job listing websites ran by the government as these don’t use deceptive tactics to get you to sign up. If you’re lucky, your professional niche has their own jobmarket websites (see, for example, rustjobs.fyi ), or popular magazine publishers that are relevant in your field have a career sub-category on their website. If you have any other tips I missed, let me know (email or your own post is fine!) and I’ll add it. Reply via email Published 28 Nov, 2025 The on-site search is terrible to use. Search engine is easier. Most of the results are ads. Anything after the first 3 results is completely unrelated to the field you want. You aren’t allowed to see the job posting without an account, or only as “Recruiter”. The preview is almost completely useless. Partially blurred-out information that you are only allowed to see with an account.

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ava's blog 3 days ago

it feels like a calling, finally

Content warning: Brief mentions of disordered eating habits. Whenever I am deeply and actively involved in my passion topic (data protection law), I don’t care about the superficial stuff anymore. Writing, researching, talking to others about it, attending events just completely takes me out of the usual thought spirals and needless worries and makes me feel so at peace, so happy. I mean the things that the internet is especially good at convincing you of, even if you aren’t on specific platforms or in certain bubbles; the things that drip down to you from elsewhere, seep through the barriers. Beauty standards, looksmaxxing, pretty privilege, the current emphasis on making money via your looks as a social media or OF career, the idea of a dating market, dating strategies and having to optimize your value and constantly self-improve. The hope that by leveraging looks and weird manipulative books on how to win people over, you’ll get further professionally, as people perceive you as more competent and trustworthy. You need to be perfect because if you can’t even take care of yourself, how will you handle anything else? Together with a lot of memes about how “that’s how ugly you look if you (negative behavior)”. The message is clear: If you are sick and/or ugly, something is wrong with you and it shows on the outside to warn everyone to stay away. Some girl putting on makeup is telling you what’s chic and not chic, creating fear that people will not choose you, will even exclude you for minor a faux-pas. Things like considering a jaw shave to make my face more symmetrical or moving my hairline or doing Invisalign or losing another 10kg or considering a fitness regime to develop visible abs… only pop up as a sort of static noise and circular obsessive thoughts when I am lonely and/or directionless, hopeless, lost, questioning my path, not engaging actively enough with what I love. Whenever I am fired up for my passion and engaging with it, I don’t care about my looks or my weight. All I care about is treating my body well so I can do more of what makes me happy, and serve that passion well, devote myself fully. It feels like my calling, it feels like something I want to give myself to entirely, like a farmer is giving themselves to their harvest completely (cringiest thing I have ever said on this blog, but I don't know how else to say it!). I no longer care about eating as little as possible, and trying to postpone it as long as possible, while choosing low cal options that are as filling as possible to cheat my body. Instead, I care about eating enough and at the right times so I can read complicated texts, write, analyze, learn, am able to follow a lecture, and feel stable enough to travel and make it somewhere. I value it as the fuel that it is, to keep this meat mechsuit going that enables me to do the things I do, together with exercise for strength, not calorie deficit. I cannot do my part if I'm dizzy and weak. I also stop obsessing about how fat or asymmetrical my face might look from an angle or while I smile. Instead, I care about what I develop inside, and what comes out of it; that my ideas and words are meaningful, true, helpful. I care about understanding things correctly, of being able to explain them well, and about being able to afford my dreams and goals (further education), not beauty. I finally get to focus on giving my cognitive power, my presence, my body for the cause, not the eye; because I feel like this is my mission, and to pursue my mission well, I can’t starve myself, I can’t prioritize risky elective procedures and recovery, I can’t withdraw out of fear of being perceived as ugly or weird when my desired field compels me to talk to people more knowledgeable than me and learn. It really is true that beauty standards hold us back so much, distract us, take bandwidth and focus away. It can be so hard to break through the fog of these thoughts that tell us to provide value with our bodies and not our thoughts and words. I’m not going to be a better expert at this topic by being underweight or having abs or a smaller cheek, so why waste time on it pretending these subtle changes will help my overall success? The work ahead is straightforward, and nothing of it involves beauty. The internet drastically overstates the importance of these things. I already have great grades, a great work ethic, readers, an amazing mentor, the drive and intelligence. All of that is much more important for my success and happiness than fixing superficial flaws that no one but me is really noticing. My body is already going through enough, it deserves better. Reply via email Published 27 Nov, 2025

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ava's blog 3 days ago

i need more freaks in law

'Freaks' is used affectionately here to describe all kinds of creatives, weirdos, misfits, outcasts, alternative individuals, leftists, queers, furries and all that in a loving way. Where I live, law has a reputation to be dry, boring, business oriented, full of ex-nobility and wealthy people, and it's not wrong. You'll find lots of well-off conservatives and neoliberals, apolitical people just there to make a big buck and to get clout, and people with some questionable sense of justice. Makes sense then that most people think you need to fit into that sort of group to be interested or have a good time in law: be boring, be professional, stone-faced, serious, rich, holier-than-thou, capitalism-lover, wear muted colors and perform gender and sexuality in the approved way, be straight-laced and rule-loving. But honestly, law needs the opposite! Law needs you. I miss you in law. I miss all you freaks. There is space for you here. Your perspective, your input, your boldness, your intelligence and creativity is needed. There is no need for you to boycott law altogether even though you see it critically. Even if you rightfully acknowledge that lots of law is there to protect wealthy interests, you do better if you understand it. These are still the rules we currently have to live under, which means you're better off understanding, analyzing and utilizing it rather than pretend it isn't there. You cannot protest and change what you do not understand. Moreover, your own need you. Oppressed groups need you. Consumers, tenants, workers, children all around the world need help with their rights, they need help getting explanations for what's happening to them and how they can fight back in the language that the state speaks. The environment needs you, privacy needs you. Law benefits so much from a critical analysis through a queer lens, an anti-capitalist or abolitionist lens - whatever you want. You don't have to be a judge, or an attorney, or a lawyer getting people and companies off the hook for terrible crimes, or getting more people into the prison system. You can instead use legal expertise to help in your local chapters or NGOs, you can work in consumer associations or tenants association, you can help with legal resources for disability rights and domestic violence. You can also work with anti-surveillance groups, with environmental justice groups or civil liberties and racial justice groups. You can become a legal journalist or write about law online on your blog. I miss you when I go to conferences and other law spaces and there's not a single freak, just a sea of old white men that smell like shoe polish and money, waxing poetic about what scummy pharmaceutical company they helped evade consequences. I miss you when I sit in lectures and my peers argue for why a mentally ill person stealing food in the supermarket should go to jail. I miss you when it's time to discuss transgender laws. You don't need to conform, you don't need to kiss ass. I'm here too, and I love data protection law. Reply via email Published 27 Nov, 2025

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ava's blog 1 weeks ago

the superiority complex of the screen minimalist

During my decoupling from almost all online services and apps I had (2016-2018), I was prone to looking at the people around me with concern and judgment about their digital consumption. It was the typical sort of short-term enlightenment phase you get when you realize something big and change your life around. When you’re a hammer, everything looks like a nail, and because I was so freshly into deleting my social media and installing website/app blockers on my devices, every person on their phone in public was a consumerist victim addicted to the screen in my eyes. The prevalence of that view made it feel like a national emergency, a contagious disease ruining us all. Smugly, I looked around and thought: Wow, thank god I’m not a zombie anymore! I’m totally in control of my own thoughts and consumer behavior! I’m self-aware and no longer have my attention hijacked! As these people are on their phones endlessly scrolling, I’m reading a non-fiction physical book, which is so much more worthwhile and healthier for my brain and attention span! I still don’t have social media accounts, and I don’t even need any blockers anymore. My phone isn’t tempting me and neither is my laptop. I’m okay with my screentime . Since then, I have mellowed out. For one, it became the new normal, and also, I recognized that I made up stories in my head to feel superior to others. The truth is: By looking around, I don’t actually know what anyone else is doing. It’s just a baseless assumption in alignment with my own worldview, a self-serving one at that. While looking at their phone or tablet, others might be reading an e-book, studying, messaging a friend, doing their shopping list, journaling, making an appointment, searching for recipes, looking at maps or checking off a to-do list. While having their headphones in, they might be listening to a guided meditation, an audiobook or voice messages by friends, or just use noise-cancelling while nothing is playing, or use it as a deterrent for others to leave them alone. I can’t know that. And even if they aren’t, and they’re playing Subway Surfer or scrolling on TikTok while listening to music, I don’t care anymore. They don’t owe me the opposite, and they aren’t out in public to impress my opinionated ass. Why should they engage with only what I personally think is good? I will probably see about 10 minutes of this person’s life before never (knowingly) seeing them again, and it’s not nearly enough time to get an idea of their digital habits. Seeing them as someone who can’t sit with their own thoughts, a sort of addict, is an unfair view. In the end, the places where I noticed the most glued-to-the-phone-behavior were the most boring places known to man. What did I expect looking around in doctor’s waiting rooms and public transport? And why did I have to compare myself to them and come out on top? Why did I feel like rawdogging these moments with no entertainment would earn me a medal? Ohhh my god you didn’t check your phone so far today? Should we tell everyone? Should we throw a party? Should we invite Cal Newport? 1 Related: It may not just be the damn phone . Reply via email Published 21 Nov, 2025 Meme reference to Ohhhhh my god u only had a iced coffee to eat today? should we tell everyone? Should we throw a party?should we invite bella hadid ↩ Meme reference to Ohhhhh my god u only had a iced coffee to eat today? should we tell everyone? Should we throw a party?should we invite bella hadid ↩

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ava's blog 1 weeks ago

📌 i got my data protection law certificate!

On the 30th of October , I officially finished my data protection law certificate! I'm a bit late to post this because I was so busy and still needed to wait for the actual paper to arrive plus getting a frame and all. :) The certificate ('Diploma of Advanced Studies') is intended for 3 semesters in part-time. I finished it up in one semester with a grade average of 2,2 1 while continuing my other part-time degree (a Bachelor of Laws, LL.B) and full-time work. It is quite a bit more intensive than the 2-week crash courses to be a data protection officer and I had to write 6 exams in total, but it enables me to be one plus the permission to call myself a certified consultant for data protection law. I'll have to refresh it every 4 years with a refresher course, or lose it. While I love to write about commercial tech and social media through a privacy lens here and burn for that topic in private, I intend my career/professional focus to be about health data and AI. I already work with pharmaceutical databases in my job, and I wouldn't wanna miss that part of my work day. My first of hopefully many pieces of paper on that wall 2 . Would love to do AIGP, CIPP/E, CIPM and ISO27001 Lead Implementer some time, and obviously finish my Bachelor degree and start a Master's in data protection law. This cert consisted of the first 3 modules of that Master's degree already, so I know what's ahead of me and I know I can do it. :) Now I'm off to another MRI, because my body is being difficult. I hope to post more soon <3 Reply via email Published 20 Nov, 2025 In case there is confusion, it is the opposite of the American GPA system: 1,0 is good, 4,0 is bad. ↩ I may even get a second frame already to also put up the actual grade records next to it. The one on the wall is just the naming rights proof. ↩ In case there is confusion, it is the opposite of the American GPA system: 1,0 is good, 4,0 is bad. ↩ I may even get a second frame already to also put up the actual grade records next to it. The one on the wall is just the naming rights proof. ↩

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ava's blog 2 weeks ago

the GDPR is under attack

A while ago, the European Commission launched a Digital Package on Simplification . The goal was to focus on regulatory and administrative issues in the digital law space ( 'digital acquis' ): Reducing burdens on businesses and citizens, updating parts to the current technological advancement, and providing clarifications on some overlap between laws like the GDPR, the AI Act, etc. This included: There was a call for evidence sent out by the Commission in September to get input by stakeholders and experts on how to simplify the rules around data protection, cybersecurity, AI and more and any pressing issues and concerns 1 . The deadline passed in the middle of October, and an official proposal developed from these insights is supposed to be released on the 19th of November. The hopes for this proposal were high: So-called small mid-cap enterprises ('SMCs', between 250 and 750 employees, annual turnover between 50 and 150 million) 2 were introduced as a group earlier this year, and the companies falling into this category expected to be exempt from the more time- and cost-intensive regulatory parts of the GDPR specifically. EU citizens all over wanted a better way to handle cookie consent that does not result in 'cookie fatigue' and still respects their choice. Noyb.eu and others suggested an automated, browser-integrated setting tool for cookie objections called the Advanced Data Protection Control (ADPC) . 3 A version of the proposal document leaked (undated) and I'm writing this to give an overview over the 156 page document, focusing on the relevant bits for end-users, and some juicy stuff. The proposal, as it is right now pre-release, would suggest to: There's a separate proposal to amend the AI Act aside from this omnibus, too. All this doesn't have to immediately be bad, as this is kind of what the whole thing set out to do. We have to look closer as to what the actual amendments are and if the repealed ones are superfluous and merged into the appropriate law for clarity. The most important scoop, specifically Article 2 amendments to clarify other articles: Changes the definition of personal data under Article 4, stating that information is not considered personal data for a controller (= company, etc.) if it does not have any means that could reliably identify the person. This would enable companies to avoid the obligations of the GDPR for quite a lot of what was before thought of as personal data. It is particularly problematic, as it introduces ambiguity around what is or isn't personal data based on what each controller subjectively is capable of based on their own unique capabilities. Conclusively, it would remove pseudonymous data or indirectly identifiable data from GDPR application, when it used to be covered before, significantly lowering protections. (Page 17) Processing of special categories of personal data (Article 9) is changed. For one, it is not strictly forbidden unless a specific rule of allowance is met anymore; instead, it is only prohibited if it directly reveals (instead of infers) a person's sensitive personal data (health, ethnic origin, sexual orientation, religion etc.). That would ironically mean that people who don't want to disclose their sensitive information would lose all protections while those who share it outright via processing would be protected. Another one of the exemptions would be for the residual processing of special categories of personal data for development and operation of an AI system/model , and for verification via biometric data (think, verifying someone's identity via fingerprint). (Page 18) Article 12 is clarified to specifically include that the right of access should only be used for the purpose of protecting personal data, nothing else, and if it is used for other matters, the company can refuse or charge a fee. In practice, it indeed was used a lot to get additional ammunition in court cases, especially between employer and employee. There's a lot of court cases where employees and citizens have used their right to know what data is processed and getting a copy of it to get a hold of internal communication that helps their case against that entity. It's going to be interesting seeing the courts decide whether the motivation of a data subject was truly for data protection reasons or not; a simple court case against an entity should not bar you from enacting your rights. (Page 18) Article 13 (which is the obligation of a company to inform you if they process data about you that they get from you directly) is changed so that there is no obligation to inform you if there is reasonable grounds to expect that you already know this, unless they also transmit the data to other recipients, third countries, there is automated decision-making or there is a high risk to your rights. Seems like in practice, this won't change much, as almost all data processing where they get the data from you directly fall under this - just think of creating a user account on Facebook or a bank account at your bank. But still wanted to include it as it still fits into this overall image of the omnibus attempting to create some loopholes and less restriction on companies. (Page 18) Requirements for automated decision-making in Article 22 are clarified. It previously said that people have the right to not be subject to a decision based solely on automated processing and profiling that has legal or significant effects on them, unless some conditions are met. These conditions are when the decision is necessary for entering into or performing a contract, it's authorized by law, or there is explicit consent. The proposed change concerns what “necessary for a contract” means, clarifying that “necessity” does not depend on whether a human could make the decision instead. That's... not really helpful? Then what could necessity possibly else be? This is clearly just to enable more AI decision making, when we all know almost all AI decisions (like in hiring etc.) can be done by a human instead. (Page 18) Article 33 and 34 deal with reporting requirements when a data breach happens. Previously, they had to always notify the authority unless the risk is very low, and only notify individuals if the risk was high. In this proposal, it is suggested to significantly loosen the requirements, stating both notifications (to the authority and to individuals) would only be required if the breach is likely to result in a high risk to people’s rights and freedoms. The notification deadline is upped from 72 hours to 96 hours as well. That means significantly less oversight and knowledge about data breaches and more time for it to do some damage before relevant parties can start to act and protect themselves. (Page 18) Processing of personal data on and from 'terminal equipment' (= phones and computers) is supposed to be handled solely by the GDPR now instead of the ePrivacy Directive, and cookie regulation is intended to be aligned with its principles. (Page 6) The proposal intends to pave the way for automated, machine-readable indications of individual choices in the settings and calls upon the standardization bodies to develop a standard. Once that standard is set and implemented on all kinds of browsers and devices, there should be a 6 month grace period before website controllers are obliged to respect these settings. This sounds very close to, or exactly like, the Advanced Data Protection Control (ADPC) I mentioned above, which means we could one day have just a setting in the browser instead of banners and checkmarks. (Page 6) Unfortunately, they write: "Considering the importance of advertising revenue for independent journalism as an indispensable pillar of a democratic society, media service providers as defined in Regulation (EU) 2024/1083 (European Media Freedom Act) should not be obliged to respect such signals." Which means you can get ready for every news site to track you to hell and sell your data under the guise of democracy. This unfortunately shines a new light on how the EU is willing to handle "Pay or Okay" cases moving forward, which is very disappointing. ePrivacy Directive: Tracking allowed without consent if it poses a low risk to rights and if it is needed to fulfill a contract. That could significantly lessen our protections and rights against ubiquitous tracking online... (Page 5-6) Unfortunately, the main omnibus proposal document only includes contextual references to AI Act changes, but not the specifics; those are in a separate document here . In short (Page 3, 11-12, 27): They expect possible savings of at least 1 billion EUR annually, with an additional 1 billion savings in one-off costs, amounting to a total of 4 billion over 3 years by 2029 (Page 12-13). It seems like what companies and the average citizen have hoped for was made true - bureaucratic relief for companies and some of the overseeing bodies alike by loosening requirements, shortening them or making them voluntary, as well as paving the way to tackle the cookie banner problem via an automated setting across websites. But: Even though the document repeatedly says they look to keep the high protection standard and ethical core of the regulations intact, I can't agree that they succeeded. Changing the definition of personal data in such a way that it would significantly shift application of the GDPR is messing directly with the level of protection and raises several concerns. Most of the changes really are not in favor of the data subjects; instead, they just make it easier for companies to not have to comply, to not have to tell, to not have to record or report, while making it easier to track and collect data without consent, further bolstering "legitimate interest" and supposed contractual obligations or the subjective capabilities of identifying an individual as valid reasons. It seems to me that the Commission is fully willing to go the path of 'all or nothing': That, if you sign up for certain services, you are fully consenting and have no granular control over what happens with your data, because it is all lobbed under the doubtful reasoning of "providing a service for you". We all know Meta doesn't need half the data it collects to provide that service to you, but it seems like the times of holding companies accountable for this have passed as this business model is legitimized and the EU is scared of being left behind in innovation if we want to stick to the rule of law and democratic values. It's not taken into account how many people feel forced (whether by their environment, their employer, their industry peers, their job chances, their own emotional reliance) to use these services who'd prefer to use them in the most data-restrictive way possible. Citizens should not feel the need to have to sell themselves out fully just to access a digital job marketplace or a digital flea market. In practice, it's looking bleak for what once made the GDPR special. We'll have to see the final version on the 19th, and then look whether the proposal is accepted and how it is put in practice. If you want to read the doc yourself, here is the link. Reply via email Published 13 Nov, 2025 There was a lot more than that, but if you want the details, read this , page 11. And: The European Data Protection Board (EDPB) also asked for feedback on the Guidelines 03/2025 of the interplay between the DSA and the GDPR, and you can find that here . Interesting to note: You can publicly see the feedback that was given by Google Ireland , Meta Ireland , and Amazon EU . ↩ Not to be mixed up with SMEs, which stands for small and medium-sized enterprises. According to the proposal, SMEs now include SMCs, when they previously didn't. ↩ Here is the initial news of the tool from 2021. ↩ a digital fitness check based on the criteria of effectiveness, efficiency, relevance, coherence and EU added-value, as well as a digital 'omnibus' , which means large-scale amendments across many existing acts and regulations, streamlining them to be more cohesive and easier to apply. amend the GDPR, the Data Act, the AI Act and the ePrivacy Directive amend the NIS2 Directive (<- cybersecurity) repeal the Data Governance Act repeal the Free Flow of Non-personal Data Regulation (FFDR), and Regulation 2019/1150, which is for promoting fairness and transparency for business users of online intermediation services (also called P2B Regulation) repeal the Open Data Directive Changes the definition of personal data under Article 4, stating that information is not considered personal data for a controller (= company, etc.) if it does not have any means that could reliably identify the person. This would enable companies to avoid the obligations of the GDPR for quite a lot of what was before thought of as personal data. It is particularly problematic, as it introduces ambiguity around what is or isn't personal data based on what each controller subjectively is capable of based on their own unique capabilities. Conclusively, it would remove pseudonymous data or indirectly identifiable data from GDPR application, when it used to be covered before, significantly lowering protections. (Page 17) Processing of special categories of personal data (Article 9) is changed. For one, it is not strictly forbidden unless a specific rule of allowance is met anymore; instead, it is only prohibited if it directly reveals (instead of infers) a person's sensitive personal data (health, ethnic origin, sexual orientation, religion etc.). That would ironically mean that people who don't want to disclose their sensitive information would lose all protections while those who share it outright via processing would be protected. Another one of the exemptions would be for the residual processing of special categories of personal data for development and operation of an AI system/model , and for verification via biometric data (think, verifying someone's identity via fingerprint). (Page 18) Article 12 is clarified to specifically include that the right of access should only be used for the purpose of protecting personal data, nothing else, and if it is used for other matters, the company can refuse or charge a fee. In practice, it indeed was used a lot to get additional ammunition in court cases, especially between employer and employee. There's a lot of court cases where employees and citizens have used their right to know what data is processed and getting a copy of it to get a hold of internal communication that helps their case against that entity. It's going to be interesting seeing the courts decide whether the motivation of a data subject was truly for data protection reasons or not; a simple court case against an entity should not bar you from enacting your rights. (Page 18) Article 13 (which is the obligation of a company to inform you if they process data about you that they get from you directly) is changed so that there is no obligation to inform you if there is reasonable grounds to expect that you already know this, unless they also transmit the data to other recipients, third countries, there is automated decision-making or there is a high risk to your rights. Seems like in practice, this won't change much, as almost all data processing where they get the data from you directly fall under this - just think of creating a user account on Facebook or a bank account at your bank. But still wanted to include it as it still fits into this overall image of the omnibus attempting to create some loopholes and less restriction on companies. (Page 18) Requirements for automated decision-making in Article 22 are clarified. It previously said that people have the right to not be subject to a decision based solely on automated processing and profiling that has legal or significant effects on them, unless some conditions are met. These conditions are when the decision is necessary for entering into or performing a contract, it's authorized by law, or there is explicit consent. The proposed change concerns what “necessary for a contract” means, clarifying that “necessity” does not depend on whether a human could make the decision instead. That's... not really helpful? Then what could necessity possibly else be? This is clearly just to enable more AI decision making, when we all know almost all AI decisions (like in hiring etc.) can be done by a human instead. (Page 18) Article 33 and 34 deal with reporting requirements when a data breach happens. Previously, they had to always notify the authority unless the risk is very low, and only notify individuals if the risk was high. In this proposal, it is suggested to significantly loosen the requirements, stating both notifications (to the authority and to individuals) would only be required if the breach is likely to result in a high risk to people’s rights and freedoms. The notification deadline is upped from 72 hours to 96 hours as well. That means significantly less oversight and knowledge about data breaches and more time for it to do some damage before relevant parties can start to act and protect themselves. (Page 18) Processing of personal data on and from 'terminal equipment' (= phones and computers) is supposed to be handled solely by the GDPR now instead of the ePrivacy Directive, and cookie regulation is intended to be aligned with its principles. (Page 6) The proposal intends to pave the way for automated, machine-readable indications of individual choices in the settings and calls upon the standardization bodies to develop a standard. Once that standard is set and implemented on all kinds of browsers and devices, there should be a 6 month grace period before website controllers are obliged to respect these settings. This sounds very close to, or exactly like, the Advanced Data Protection Control (ADPC) I mentioned above, which means we could one day have just a setting in the browser instead of banners and checkmarks. (Page 6) ePrivacy Directive: Tracking allowed without consent if it poses a low risk to rights and if it is needed to fulfill a contract. That could significantly lessen our protections and rights against ubiquitous tracking online... (Page 5-6) Unfortunately, the main omnibus proposal document only includes contextual references to AI Act changes, but not the specifics; those are in a separate document here . In short (Page 3, 11-12, 27): More simplifications, flexibility in post-market monitoring, exemptions for R&D scenarios, and delaying some obligations. No obligation for AI literacy of staff anymore, only encouragement to foster it? High-risk AI systems (especially those used by public authorities!) get an extension for the deadline to comply - until August 2030 (for comparison: general purpose AI systems need to comply by 2027). Isn't that insane? The high-risk systems should be the first to have to comply, as they are, by name, high-risk. They expect possible savings of at least 1 billion EUR annually, with an additional 1 billion savings in one-off costs, amounting to a total of 4 billion over 3 years by 2029 (Page 12-13). The proposal aims to create a single-entry point via ENISA through which reporting obligations can be fulfilled for multiple legal acts, saving on some administrative burdens and no more double-reporting needed. But it also centralizes power on EU-level, reduces national control and transparency. (Page 7) The P2B Regulation is suggested to be repealed because the Digital Markets Act (DMA) and Digital Services Act (DSA) are considered to largely overtake the old one. (Page 7) The Open Data Directive's rules are absorbed into the Data Act. (Page 8) The Data Governance Act (DGA) which specifically handles how data can be shared and reused across the EU by 'data intermediaries' (companies that help others share data, like AWS Data Exchange or Microsoft Azure Data Share) and 'data altruism organizations' (entities that collect and share data voluntarily for the public good, like the European Brain Data Hub in Belgium) is supposed to be amended so it's easier for data-sharing services to grow. Unfortunately, that means that complying with certain legal requirements under the DGA is turned into a voluntary framework rather than an obligation. Also, currently the DGA requires that a company offering data intermediation services must have a legally separate company to run those services to avoid conflicts of interest, for example. Under the new plan, that strict requirement would be relaxed and companies wouldn’t need a separate legal entity, only a functional separation (for example, separate departments or IT systems), as long as they meet certain other conditions to ensure independence and trust. The overall compliance requirements for data intermediaries are supposed to be drastically shortened for fewer administrative or reporting duties, and reporting and transparency obligations for data altruism organizations are removed. (Page 15) The requirements of when to do a data protection impact assessment (DPIA) are harmonized in terms of how, when, and what high risk means. There will also be harmonized templates.The European Data Protection Board would be obliged to prepare a proposal for a common template. (Page 18) There was a lot more than that, but if you want the details, read this , page 11. And: The European Data Protection Board (EDPB) also asked for feedback on the Guidelines 03/2025 of the interplay between the DSA and the GDPR, and you can find that here . Interesting to note: You can publicly see the feedback that was given by Google Ireland , Meta Ireland , and Amazon EU . ↩ Not to be mixed up with SMEs, which stands for small and medium-sized enterprises. According to the proposal, SMEs now include SMCs, when they previously didn't. ↩ Here is the initial news of the tool from 2021. ↩

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ava's blog 2 weeks ago

one year of hair growth

At the end of October 2024, I cut all my hair off, and let my wife shave it off to 9mm. I wrote about that here . I did it because various illness and medication effects made me a lose a lot of hair. In November that year, I shaved it once more, down to 5mm, then let it grow. This is the current status: Have done nothing to it except letting it grow. It looks and feels healthy and seems like the hairloss has stopped and reversed. :) I still wear wigs most of the time I'm out of the home, though. Reply via email Published 12 Nov, 2025

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ava's blog 2 weeks ago

disability and living for yourself

I am scared of the point in disability when you are seemingly just living for other people, not yourself. The point where all of your personal goals and dreams have been shattered, developing a new identity is gatekept by your abilities and your caregivers, and your purpose seems to just be existing as a reminder to everyone else that they should be grateful for their health and life. You can’t die (yet), because that would make everyone sad, and it would cease to be the inspirational story of never giving up and always smiling through it all that they want it to be. They want to look at you, be happy they’re not you, but simultaneously also want you to keep fighting so they know that even if they became you, that life is still worthwhile and happy. Bearable. It’s too painful to admit that maybe it isn’t sometimes. I think people love disability stories like Stephen Hawking because people like him were still able to leave a mark, did what they love, had tools to move, and functioned (mostly) under capitalism. They love to think that they will also score similarly on the disability roulette, and I hope so too, but we also tend to forget that these people often had vastly different resources and privileges than many, too. It reminds me of the liberal disability advocacy that tends to push mostly healthy people in the foreground with a caption that’s something like “I might look different, but I’m just like you!”. The message tends to skew towards something like “People with Down Syndrome can still work in your company!”, fighting discrimination based on a sort of ableist lookism or fear of wheelchairs, and focusing on the fact that they can still be productive. You can see something similar happening in certain autism advocacy groups led by allistic parents, who love to push low-needs geniuses (“savants”) as the face of autism. The cynical might see this as an admission of the fact that many can only stomach the disabled if they somehow make up for their disability via another good or even exceptional quality that can be monetized or contributes to the greater good. Many disabled people are just not that. It might be the reverse: looking just like you, but the illness(es) make studying, reading, writing, thinking, or formulating and voicing things, difficult or impossible. It doesn’t even have to be outright cognitive damage - chronic fatigue, chronic pain, lots of doctor’s appointments and more can make education hard, especially if it’s in a school setting or a degree, in a rigid schedule, lots of text. When my chronic pain is high, I can’t even keep up with my Zoom classes, and I can’t retain what I read. Writing is okay, but speaking is hard, and I blank every couple seconds, and stop multiple times in the sentence, searching for words. I lose words, I mix them up, I stutter. That’s the same person writing all of these posts though, the same person enrolled in a law degree, the same person holding down a fulltime job. It’s the same person with dreams and goals that might be significantly altered or shattered down the road against my will because of illness progression. I thought about all of this because of a YouTuber I like to watch, Vereena Sayed. She has created videos for years, but I only discovered her last year when I was very sick. I loved seeing her on her pink motorcycle, riding with her dad while I was in bed, in pain. But soon after, I found out that she was in a horrible accident since she uploaded those videos, and barely survived. She was in a coma, with 9 broken bones, a shattered spine, a broken jaw and a TBI. For a long time, no videos were uploaded, but recently, she has started uploading again. She’s showing very candidly what her life now looks like: A wheelchair, needing help 24/7, lots of physiotherapy and… pain. On Instagram, she recently admitted that she tried to kill herself. In her latest video, she says: “I hope this video motivates you to not end up like me.” The accident wasn’t her fault; there’s nothing she could have done to avoid this. It hurts, seeing her have to resign herself to being a memorial or an inspirational story, because her old goals and path are dead, and there is not much else to do than live for others when you can’t live for yourself (yet, or ever). It also reminds me of another quote I heard recently, that I also wrote in my notebook: “I’m scared of losing the rest of my worth.” Reply via email Published 10 Nov, 2025

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ava's blog 3 weeks ago

my loot drop - what's in my inventory?

You've slain me. On your quest to rise up the Bearblog Trending mountain, you had to go past me. As your final hit rains down on me and my HP bar depletes, my body pulsates on the floor and slowly evaporates. What I leave behind are the following items: Matcha Drink Powdered green tea beverage with a nutty, slightly bitter taste. +5 Energy . Benji Charm Legend says he has provided strength in the most hopeless nights. While holding or keeping the plushie nearby, you gain advantage on saving throws against fear, despair, or stress-related effects. Crystal Ring Ring It hails from the far away fae lands. Forged from living quartz harvested under a moon. +2 Strength . Law Book Spell Book Forged by sages and legislators who believed privacy itself was a form of sacred protection, this tome channels the invisible rules of data protection into tangible wards and bindings. Spell: Right to Be Forgotten Effect: Erases traces of your identity from archives, magical records, and memories weaker than your Intelligence modifier. Enemies who knew you must pass a Wisdom save or simply forget your name. “Knowledge is power, but consent is sacred.” — Preface to the Data Protection Codex, Volume I AirPods Equipment Ancient blacksmiths of the techno-age forged them to fend off the chaos of constant noise. +4 Focus. Drawback: While active, you may miss crucial social cues or warnings. Other players gain advantage on Stealth checks against you, especially when they are of the type "wife". Pirate is hosting the Bearblog Carnival topic this month , inviting us to consider what we have in our inventory. I wanted do it less like a "what's actually in my bag", but more game-oriented. :) Reply via email Published 04 Nov, 2025

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ava's blog 3 weeks ago

checking in - october/november

Small update! I am halfway through my really full weeks :) I was at my first data protection law conference last week. Even with the reduced entry fee, it is still too expensive in my opinion... but I still loved that I signed up and participated. Lots of new stuff learned; pages upon pages of notes in my notebook, and a lot of things I need to read up on. I think my notes vault will see some action soon. I felt a little out of place; surrounded by industry veterans and important thinkers in the space, in a really luxurious building. Everyone sort of knew each other and worked for known entities, in the well-paid industry that is law, and then there's me - the only student, first timer, grew up rather poor, just finished with my certificate. Yes, I did get my final grade while there, and am now an officially licensed data protection officer! I don't want to get too much into it, because I wanna make a separate post once the piece of paper arrives in the mail. Anyway, gross display of wealth and status always makes me uneasy, and I felt like a peasant with bad table manners in-between all of these lawyers, but I stuck through it. I'm proud of myself that I was willing to invest so much of myself into this opportunity and making it work somehow, despite my current ongoing AS flare up. I even attended the Veggienale in Nuremberg, and a birthday party by a friend, plus had brunch with my in-laws, who kindly let me stay with them so I could commute to Munich for the conference from there :) The Veggienale (an event for vegetarian and vegan food) was super small, not that busy, and really nice. Had a good talk with a rep from proveg, had some taste tests on some booths, bought spicy oil, got a sort of grain coffee for free, and had other good food. I did not like how much veggie food overlaps with the sort of 'alternative health' people you do not want . I just want cool and fair food and initiatives, not "there's an oil for cancer!" sort of shit. My AS flare up got better during my travels (survival, I guess), but now back home, has been absolutely horrible and taking revenge on me overexerting myself; especially yesterday, but today, too. I had my rheumatology appointment yesterday and we're testing more inflammation markers, I'll get an MRI to see the current progress in the spine, and an infliximab antibody test to find out of I am now resistant to my medicine... also got Celecoxib, but to be honest with you, so far it doesn't do shit. After the rheumatology appointment and a sweet cafe date with my wife, I went to the gym, already feeling more pain coming on. Exercise usually helps squash it for a few hours, but that day, I increasingly felt absolutely horrible on the treadmill. Spinal pain, numbness in my legs, and towards the end while even just slowly walking, I suddenly got a sort of panic attack. I felt like I was dying and had to stop after just 30 minutes. Went home in a lot of pain, and the rest of the evening is a complete blur, except for knowing it felt like I was in a vat of lava. I couldn't lie still, always squirming from the pain. Today, I dragged myself into work for a work event I looked forward to, and later on, the pain got so bad I had to lie on the office floor because I just couldn't sit anymore due to bad sacroiliac pain. I was already 1200mg ibuprofen in at that point. The pain drives me insane. Typing is okay, but verbally, I am a mess. I blank on everything, I search for words, I forget what I wanted to say. I talk super slowly. I have a hard time focusing on things, depending on how bad the pain is. I'm trying to keep it together and hope for better times. I am sorry if I am not responding to emails as timely as I used to, it is definitely because of my health and calendar. And honestly: Me when I am complaining about my health . There is so much I wanna do; currently I am: I have more cool stuff lined up still, another meeting with my mentor at work, and my birthday is later this month. :) Have some pictures. Reply via email Published 04 Nov, 2025 studying for my four classes I enrolled in this semester in my parttime degree fulltime working in my job role and also in our environmental team at work separately; our EMAS certification appointment is coming up, so we are prepping for that traveling around a lot, visiting friends, conventions, conferences and more searching for ways to cut costs for CIPP/E, CIPM, AIGP, and ISO 27001 Lead Implementer so I can do them (each of these certs is really, really expensive, and I don't think my employer will pay for them...) attending data protection law events and lectures reading some books (just finished Doppelganger by Naomi Klein, love her books) writing these blog posts, and some posts on my matcha blog every now and then researching and reading up on some things from the conference I attended continuing to help translate and summarize court decisions for GDPRhub by noyb summarizing and reworking notes for my notes vault so it will hopefully be a lot more there soon and not so barebones

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ava's blog 4 weeks ago

your AI hiring workflow comes at the cost of my loyalty and motivation

At a conference I was at, two companies talked about implementing AI into all areas and layers of their company. For the talk, they specifically zeroed in on AI in the hiring process. They began to describe that their goal (which they are about halfway there already) was: It would save them a lot of HR employees, costs and time. Putting aside the obvious legal issues that will still need to be hashed out, the categorization into the AI Act risk groups, and the human oversight and additional documentation needed that still costs them; Who wants to work at a place like this, and who wants to remain loyal to a such an impersonal and cold company that threats you like meat on a conveyor belt (even more than they already did)? Imagine not talking to a single real person at a company until you meet your coworkers. I know it might sound great at first if you are socially anxious or prefer to talk less to others, but you’ll still have to perform the same song and dance anyway - just this time, it’s an absolute blackbox you cannot be sure of. The analysis of your mood and answers plus the end summary might go wrong and there’s nothing you can do about that. How do you prepare to impress an AI (one that is allegedly trained to ignore prompt injections)? And don’t forget: This is also about stealing the opportunity away from you to get a feel for who works there and the company culture itself. I find that part incredibly important in the interview! I need to feel like the company fits me as well, and the people leading the interview are an important part of finding out. I wouldn’t want to work for a company like that. I would cancel the application process, or, if I went through with it, I’d give the same energy right back: the bare minimum or less, and no loyalty. Why should I give my all to a company (or if handled more directly, boss) who did not even bother interviewing me or giving me appropriate training? In my view, you already treated me like you hate me before I even started. You know, these companies are really funny, talking about “shortening hiring times”. You could shorten hiring times by not putting the applicants through 3-7 rounds of interviews, you imbeciles. You are out there creating hiring processes neither the interviewers nor the interviewees enjoy and that waste costs and time, and instead of rethinking the charade, you’d rather worsen it by offloading it to a complex set of algorithms you don’t understand and rent from elsewhere. The shitty thing is that this will become the norm, and we will no longer be able to boycott and avoid this stuff as we all need to put food on the table and can’t afford to say no to a job over this mistreatment. The only recourse you have whenever AI was involved in the hiring process and you were denied is suing. Make them expose how the AI was used, on what, how, prove human oversight, prove the human final decision, and more (if mandated in your jurisdiction). Let them produce all that in documentation and keep their lawyers busy. Make them pay extra in bureaucratic busywork and court fees. I see no other way. Reply via email Published 01 Nov, 2025 Using AI to write the job listings. Using AI to scout potential employees on LinkedIn and Xing and messaging them. Using AI to automatically sort applicants and possibly even score them (!). Using AI to send out the invitations and rejections. Using AI to lead the job interview - with AI Avatars in a video call. Using AI to summarize the video interview and suggest a decision. Using AI in onboarding and training, letting the employees train themselves via a chatbot they can ask, and training materials by AI.

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ava's blog 1 months ago

my physical experience with autism

A while ago, I reflected on my troubles during my commute with other autistic people I know, and it helped put things into words that are difficult to talk about. It also helped to realize that they experience it too. My commute via tram is an hour long. A good experience for me is when the sun is rising, the tram is (mostly) empty, I have my noise cancelling headphones in, immersing myself in typing something on my phone, or reading a book; maybe looking outside just basically daydreaming until I arrive at my destination. It enables me to completely detach from my surroundings and my body in a good way and makes it feel like 10 minutes max, no physical discomfort. All that is usually given in summer, when I can take the tram between 5-6am (unpopular time) and it’s already light enough outside at that time (so no internal lights). That’s very enjoyable and doesn’t drain me, I even like it. A hellish commute is the opposite: Full of people, lots of noise and no noise cancelling, overwhelming scents, harsh lights from the top. That tends to happen when it’s late (popular commute times) and during winter, when it’s still dark outside for long and the lights inside the tram have to be on. By default, most tram rides fall somewhere inbetween those two, and it’s very exhausting for me anyway. It’s the reason why I only go into the office twice a week (the immunosuppression, too). Depending on a lot of different factors, including my own sensitivity that day, I start to feel really sick in the tram. It’s my autism. I get headaches, nausea, my bones hurt, I feel tired and like I suddenly have the flu; I dissociate, my brain feels foggy and heavy, and I’m very impatient and angry. I get the urge to exit the tram constantly and I have to fight that all the time. I keep myself still to not draw attention to myself or to not be weird in public, so I can’t squirm and or wiggle my leg or rock to deal with the situation. That’s also an area where autism and my chronic illnesses interact: When I feel that flu-ish during overload, my illness spots start to act up too, sometimes temporarily until I’m removed from the situation, and sometimes for weeks as these experiences accumulate, maybe through being outside more and traveling more. It’s stressful for my body. This doesn’t just happen in public transport, but also some other places like supermarkets, loud cafés and similar spaces. It’s why I don’t go out that much, don’t travel much. I like parks and forests as most other spaces don’t feel welcoming to me at all with how full they are, how loud and smelly they are and everyone’s conversations all at once. I shut down when I have to sit there for a while, feeling like I am watching my life through a screen, unable to muster up the energy to interact, and often unable to filter the conversation directed at me from the background noise. I usually don’t talk about this because I don’t expect anyone to understand. What are bosses supposed to think? Oh, your body hurts really bad and you feel sick and exhausted before even arriving at work sometimes because you have to sit in a tram for an hour because of light and noise? Sounds lazy, sounds like you’re making shit up to not have to come in. But really, it’s bad for me and I would not be able to do this 5x a week. I already do everything I can to minimize what bothers me (by noise cancelling, taking very early trams etc.), but I can’t eliminate it entirely, especially on the way back home. I think if I had a shorter commute and/or I could walk or bike over instead, I could handle a lot more office days. I can push through this if it’s warranted - I come in extra for trainees, for extra meetings, for in-house events, and I am willing to travel for educational purposes (like the data protection law conference this week). But it comes with a toll, a physical discomfort that goes beyond what’s average or considered “normal”. And it adds to my chronic pain. Now, the second day of lots of commuting and sitting in a conference listening to presentations for hours, my body is hitting a limit and my hands and feet pulsate with pain. Still, I have a board game evening, a birthday party, a veggie food convention and a brunch with in-laws ahead of me this week. Oof! Reply via email Published 30 Oct, 2025

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ava's blog 1 months ago

you radiate knowledge

I don’t know if you’ve felt that way too, but I certainly have hundreds of times: Looking at others around you who are really knowledgeable on specific topics and you wonder: How do they manage to learn so much about that and keep on top of everything? Or, looking at the standards in your field of work, wondering how you’ll possibly reach that level of competence. I’m writing this during the lunch break of a data protection law conference I am attending this week, and it has made me appreciate how much knowledge is radiated, is trickling down. Industry experts and specialists of all areas and years of experience congregate at different places every other month to share about news, their experiences and more. Through these events, you get to know more people and can keep up with them, you get access to more literature and magazines which again have more information inside. Hints to upcoming events and ongoing decisions, recommendations for books and websites. So many presentations and articles! So much of it is word of mouth. “Hey, in case you missed it, there was this!” “This is my area of expertise, let me tell you about it” “I was interested in this problem and researched it, now I’m sharing what I found so you don’t have to” You don’t need to know it all, especially not by heart. We manage all of this by each researching and advancing and sharing so no one has to reinvent the wheel by themselves. You just need to know where to find the documents, the presentations, the papers and articles of the people who do know, and you need to know who to ask, who’s fitting for this sort of topic. And you too radiate knowledge! I got so much secondhand knowledge just from people sharing about their day - their hobby, their work, their special interest. Things I never would have looked for or cared to ask otherwise. It doesn’t need to be in an educational setting, on some conference or class. Blog posts are great, a casual video is cool. Or just hanging out! It’s something that’s reflected in the way I try to write about law on my blog: I want to write about it like I would explain to a friend on a walk or at a table, with the added benefit of being able to show my sources and prove my claims. I want to strike a balance between accuracy and talking about it in a way almost everyone could understand. And through that, knowledge trickles further down. We are all knowledge filters and disseminators. You don’t need to know everything there is about data protection law, but I’ll let you know of things that might tangentially relate to your every day life. In turn, you’ll let me know about programming, gardening, architecture and more. Reply via email Published 30 Oct, 2025

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ava's blog 1 months ago

pain management

Allow me to crash out for a second. Since roughly a month, I’m experiencing a flareup in my spondyloarthritis (Ankylosing Spondylitis or Bechterew’s disease…). This is a type of arthritis that primarily affects the spine and usually some other joints. I first noticed it in the base of my right thumb that was painful and a bit stiff (this has now mostly resolved) and plantar fasciitis (the fascia in your foot arch, basically; my body loves attacking in this area for some reason, as I used to have frequent Achilles tendonitis as a teen). This first caused unexpected pain in some moments of walking and also resulted in issues using my phone, using a controller, and every day stuff that needs thumb mobility and pressure on the thumb. I also noticed general aches especially after resting and following some exercise. One example was having weirdly stiff elbows and shoulders after indoor cycling, which I hadn’t had in quite a while after treatment worked. This was followed by sacroiliitis (inflammation where hip and spine meet im the lower back) first on the right and now on both sides, and sharp pain in the upper thoracic spine (between the shoulder blades). That means while walking, sitting, and lying down, I have pain in the whole area of my lower back and hips, and as I breathe and my upper spine moves, I am in pain as well. Every time I breathe in, there’s a knife in my back. As nerves are affected too, I have shooting pains down my legs and into my shoulders and neck. My right leg occasionally randomly collapses away from under me due to this, but I haven’t fallen yet. Unfortunately, everything gets worse with rest (both sitting and lying down) but obviously, I can’t exercise 24/7. It’s generally difficult to hit the sweet spot each day where exercise helps and doesn’t further aggravate everything. I recently had such a great workout (30 minutes treadmill, 20 minutes cycling, 20 mins mix of yoga and pilates) that made me feel as if I had just gotten a dose of heavy painkillers, but that relief only lasted for about two hours max. I still need to sleep, study, and do an office job. I tried to go back to a low dose of Prednisone and it obviously helps a bit, but I don’t wanna be on it - I was on 80mg last year, tapered down to 50mg, and then couldn’t go lower for months until new treatment worked. I had the whole experience of side effects, even medically induced Cushing’s Disease and issues with my blood sugar. When I recently tried between 2mg-4mg, I was immediately back with the constant thirst and peeing (= blood sugar issues). It was so disrupting I had to stop. It’s sad seeing everything fall apart again. I see it in the way more stuff is lying around in the apartment than usual. Chores take longer or get procrastinated on. I am low energy. I barely go to the gym anymore and prefer to exercise at home. I heat up a heating pad for my back like 4 times a day, it’s not more than that only because I’m often too lazy and stubborn to do it more often. I try so hard not to take painkillers. You aren’t supposed to take ibuprofen with Crohn’s disease, but I have to sometimes. But when I max out my limit for it, I add paracetamol, which works less well but helps at least some. I’m especially careful with that so I don’t harm my liver. So it all becomes this big monster of trying to get the energy to exercise and making time for it in my day, then holding myself over with heating pads and stretches and distractions, before turning to painkillers as a last resort, and alternating/mixing them. I almost treat it like a luxury good, something to indulge in, because of weird shaming around it. I remember this absolutely disrespectful interview with a doctor I read this year in which he was clutching his pearls about people taking ibuprofen and that it’s so dangerous and poisonous and that people should just stop. He talked about it as if people just take these for fun over a papercut. I wish I could shit on his doormat. Peak example of a healthy and non-menstruating person with zero empathy. So every couple days, I allow myself to take them, and my inner monologue is really like “Oh well, I deserve this. I’m splurging on it. It’s okay for today, I held out long enough. But it is kind of extra. Maybe I could have skipped this one too. Is it even bad enough?” And then they kick in and I truly realize how bad it was. You get used to it after a while, your brain kind of tuning out some of it, but it’s still this constant static sound in the background that ruins everything. Realistically, if I’m being honest, I would need painkillers every morning and evening every single day. And if we’re being even more real, they would not be the freely available pills, but the highly controlled patches. But that also opens up a whole lot of other possible issues. It sucks! It fucking sucks. I throw myself into my studies, into my volunteer work, into lengthy blog posts and anything like that so there is finally some focus away from my body. If I’m in a flow state, I don’t have to be in here, I don’t have to witness this. I love slowly getting tired on the sofa and falling asleep while doing something else (like watching something) and I love being busy with something (like studying late) until I’m dead tired and then crashing into bed, falling asleep quickly. Because the alternative is going to bed in a timely manner and lying awake, being hyperaware of everything that hurts, and it starts hurting more and more as time goes on, and I’m lying there wondering how I can possibly manage the next 30 years like this, wishing it was over. I don’t have to endure this forever, of course. This flareup just needs to pass, or I need to switch medications, or I finally try and get a proper pain management going for these phases, and then everything goes back to normal. But in these moments, none of that matters. I just want it to be over. Every morning I get teleported back into this hurtful mess, and everything that would help causes more issues. It makes me angry and close to tears all the time, and makes me worry if I’ve developed antibodies to infliximab. My injection this week changed nothing. Next week will be super busy with traveling and attending events, and I’m tired of portioning out the relief. I’ll take what I need to make it, and I hope the rheumatology appointment the week after will be helpful. If anyone takes anything away from this, it should be the obvious fact that not all pain can be successfully treated with lifestyle changes and people aren’t necessarily taking “the easy way out” with painkillers. And if you look at people and think you know what causes their pain, you should consider that you never know what came first - the pain or the other things. With pain like that, it’s no wonder many people choose to avoid exercise, eat to feel happy, or self-medicate with drugs that are easier to get than a fent patch; and if people regularly get stuck on months of Prednisone, that does not help. My usually ~58kg self ballooned up to 75kg on ~6 months of Prednisone. After a year off, I’m 10kg down, 7 more to go. Reply via email Published 26 Oct, 2025

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ava's blog 1 months ago

con impressions and more [photo dump]

I went to the HeroesXP con in Cologne! Really liked the event and won't mind checking it out next year too. I love big artist alleys, and theirs also felt very diverse, very creative and cool. Artist alleys are my highlight and where I love to spend most of my time, and this con was basically 90% artist alley! Also had some German VA's of popular media (even Spongebob) and Paddy from Toggo. Have some pictures of the stalls: My other favorite stall aside from Miss Marie and Moonbia was Sarah Pluis and her lofi art. :) Here's my haul - I just love buying stuff from artists. Lots of stickers, finally a black beanie (been searching for a while for one I like!), washi tape, Cinnamoroll jewelry, some Sanrio minis. The con also had a 'Con Hon' - a convention book that travels from event to event, where you can draw, write down your impressions, advice, your social media handles and more. Was very cute, and the art in it was impressive. I obviously had to do my part and leave a little note. Aside from the con, some impressions: And also, very thankful and happy about a shirt I got. <3 Reply via email Published 22 Oct, 2025

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ava's blog 1 months ago

how can we (re)teach the importance of privacy?

A few days ago, a Twitch livestreamer streamed herself giving birth. As others sat on a sofa on the left filming and making content about it, you got to see her on the right in a tub, pushing, the more intimate parts turned away from the camera. In the background was a TV displaying the Twitch chat. I'm not here to comment on this decision directly, as she and the people involved have to make that decision and be comfortable with this moving forward, but it did make me think - we must be living through the least privacy-conscious time right now, huh? Maybe it is not even about being conscious of privacy, it's the growing devaluation of it. It goes a little deeper than just misguided retorts like " But I have nothing to hide! ". Ideas around privacy and data protection tend to overlap. Historically, if you wanted to keep something private, you just didn't talk about it, didn't write it down, didn't have it published - but that approach stopped working in the late 1900s. That's when the first data protection laws were created, as more data was recorded via new tech and states were interested in surveying or obtaining said data more or less forcefully. First, there was the Datenschutzgesetz (data protection law) of the state of Hesse in Germany in 1970 , which focused a lot on actual data safety. Then closely after, we have Sweden's Datalagen (data act), mistakenly often said to be the first worldwide (which is wrong!) that came into effect in 1974 . This law was established to regulate the handling of personal data and address Swedish citizens' concerns about privacy in the context of growing data processing technologies. A very important court decision was the Volkszählungsurteil (Census verdict) of 1983 by the Federal Constitutional Court in Germany. It laid the groundwork for informational self-determination, which means: Your right to decide who gets your data, how much, what kind of data, and when. The court held that those who don't know or can't control what information is being stored about their behavior tend to adjust their actions out of caution (also called ' Panopticism ' ) and that this not only restricts individual freedom, but also harms the common good, because a free and democratic society depends on the self-determined participation of its citizens. Offense about a census is something we can can hardly relate to nowadays, seeing how freely we share all kinds of information online; but back then, the idea of a census was a big deal . We cannot forget that just 40 years prior , that very same country gathered data on Jewish people, Sinti and Roma, disabled people, queer people and others to systematically oppress, torture and kill them. The hesitancy to gather data about specific groups after this ran so deep that it actually had a negative effect: In Germany, it was hard to detect or track the negative effects of thalidomide (' Contergan ') , a widely prescribed medication that ended up causing miscarriages and severe disfiguration in babies, because the state did not want to monitor congenital disorders so strictly after the Nazi regime had mandatory statistical monitoring under its Law for the Prevention of Hereditarily Diseased Offspring to commit various crimes against disabled people. That delayed making the connection between mothers taking thalidomide and the birth defects, harming more people in the meantime. As you can see, there used to be a lot of awareness around the risks of data you share and who collects it for what purposes - something that we are increasingly missing nowadays. It's not just that the internet and especially social media has normalized it, but that it also gets rewarded . Back then, what was the expected, foreseeable reward for sharing data with your state for the average person? Absolutely nothing, except for maybe getting punished for it in the future. There was also a culture of stigma and shame around sharing too much of your life. Nowadays though, sharing data freely with all kinds of actors, mostly companies, promises you fame and money - even information around debt, mental health, or a very messy house that people historically would rather die than share. For over two decades now, we have seen countless people have their lives changed by just one viral moment : Paid thousands for videos; book deals, podcast deals, album deals; roles in movies, collaborating with other stars, invited to red carpets and fashion shows; moving into mansions. The viral moment didn't have to be good, it just had to shock. Not sharing your life this intimately, or not sharing data at all, bars you from this completely, but participating is playing the lottery that this might happen to you, too. As living gets more precarious for many, gaming the attention economy is a chance they're willing to take, especially because it doesn't immediately seem like it has any sort of downside. If you win, you win, and if you don't, you don't and just make friends and share things with family and have an archive of your life, right? Obviously, it is not just that. People have had their lives ruined by doxxing , by hacks, by scammers using their own shared information against them. Companies leak data that puts the users at risk of identity fraud , stalkers misuse the trust the users give to them and the platform. People use the media others posted of themselves against their consent to create compromising deepfakes . Employers scour the net for your personal information before hiring you, and people might find out where you work and message your workplace to get you fired. States descend into authoritarian regimes and fascism , using what you have said online to persecute you. Unfortunately, users think all of this only ever happens to other people and is therefore not something they should keep in mind and consider while making accounts and posting. In their eyes, the victims have brought this on themselves, live in 'bad' countries, or had bad luck, and any measure taken to be more privacy-conscious is seen as completely wasted because of the surveillance device we keep in our pockets. To be clear, I am not saying that we should just shut up online; this very blog is the antithesis to that, and it would be hypocritical. But it has to be said: It is simply important to be aware, make a conscious decision and draw your own boundaries , while considering the worst case scenario. It is also about recognizing when we have been pressured and manipulated into oversharing by companies whose business model depends on it. Charlie White, while talking about the birth livestream, fittingly said the following: "I hate that there has been a complete deterioration of the value of privacy . It seems like people don't want privacy anymore. Like, there is no such thing as a special moment anymore if you can't monetize it and publicly display it . Something like the birth of your child, to me, would be [...] something so personal that you wouldn't want just a bunch of strangers peeking in on. [...] To me, this seems like a sign of the times where everything needs to be content-brained, content-oriented. There's really no other reason to be livestreaming the delivery of your child other than the obvious attention it's going to bring with it. To me, that just feels so odd, so [...] dystopian. [...] It turns something as sacred as life entering this world into a monetizable spectacle . An event that tons of people were watch-party-ing like it was a fucking football game. [...] I just think that is so fucking sad, that everything has to be content now. Before that baby can even have its first thought or open its eyes, it's already a piece of content, it's already in the social media chaos, it's already on camera. And to me, that's just crazy, but to many people, it's not. Which to me, that's kind of concerning, because we've deteriorated so much that everything is expected to be content now. " This is perfectly capturing the problem and the general attitude. We are in a culture that has lost the ability to properly assess the risks and draw boundaries in regards to privacy, where everything is content and new extremes need to be reached as viewers become desensitized or tired of the usual content strategy. People increasingly feel the need to go harder, show more, do more , be even more vulnerable to capture their audience or even get noticed, and it shows. We are reaching new levels of self-surveillance by the minute. We surveil not only our selves though, but also expose others , whether it is the people in our lives or simply strangers on the street. Our conflicts with others, or others' helpless, humiliating, embarrassing, weird or dangerous moments are now our content as we lift our phones to film the catastrophes, wars, fights and meltdowns we see. It's hard to draw the line between activism and monetizing crimes against humanity with some of them - is it just posted to create awareness, or also because it is content that will do numbers? There's also another aspect: We are living in more anxious times . The news cycle is constant and global and doomscrolling is common, so we have never been more aware of everything bad that is going on everywhere at the same time. It shows in our actions and mental health, always seeking to reassure and pacify ourselves. Our increasing feeling of being unsafe or our property being in danger is weaponized by companies looking to profit off of it. Don't you wanna see who's outside of your door? How about your driveway and your garden? How about the inside of your house so you can always check what your partner, your children and the pets are doing, or catch a burglar or fire early? Don't you wanna know where your loved ones are at all times? 1 It's giving way to constant control and checking. This has made so many people very comfortable to essentially deliver an almost completely unprotected livestream of their location, themselves, their neighbors, strangers just walking by, delivery personnel, friends and family, and any other guest (like repairmen) in or around their homes. Surveillance has made the switch from being seen as oppressive and overbearing to being basically synonymous with safety, which you can see ripples of in law as we are dealing with the UK's Age Verification Law and the EU's ChatControl . One has passed, one has a surprisingly likely chance to pass compared to the attitude and voting from the prior attempt. It's clear something has changed. Recently, I had to argue for or against a law for collection of IP addresses to fight cybercrime (' data retention ' or ' Vorratsdatenspeicherung ') for a class in my law degree. We were supplied with, but also had to research, arguments for both sides. Surprisingly, despite good arguments that the whole thing would not even be constitutional, I had a good amount of peers that valued a faux sense of safety over the constitution. One literally said " I would rather sacrifice my freedom than my safety " . So, in this culture, how do we teach people the importance and value of privacy, where becoming a glass citizen 2 is potentially a golden ticket and giving us a sense of safety, while being easier and way more fun in the short-term than the alternative is? To be honest, I just don't know. I feel like none of the arguments are reaching people anymore. They just don't care. It pales to other, more immediate concerns in their life, feels futile and touches too much on the few ways they seek relief in life. Being privacy-conscious is seen as if it is taking something away from them instead of giving them something. For some, it seems to be reduced this one-sided, technical challenge of choosing the right device or OS or browser, which complicates it further. Privacy isn't just turning some trackers off in the settings, it's also you figuratively pulling the blinds shut on your online presence for some moments. I'll leave you with a screenshot that my wife fittingly sent me this while writing this post: Sidenote: Should I start taking the difference between hyphens and em dashes seriously? Is it a good time to switch while AI is overusing the em dash? Let me know. I just never cared to select the em dash, as the hyphen was faster. Reply via email Published 12 Oct, 2025 Even I share my location with my wife and have GPS on some of my belongings. Sure, it is convenient for when I lose it, and it gives me a sense of safety that my wife knows where I am, but I am not naive about the downsides and normalization of more extreme forms. ↩ English version of the idea of a 'Gläserner Mensch' , a data protection/privacy concept about becoming fully transparent/see-through due to all kinds of surveillance. ↩ Even I share my location with my wife and have GPS on some of my belongings. Sure, it is convenient for when I lose it, and it gives me a sense of safety that my wife knows where I am, but I am not naive about the downsides and normalization of more extreme forms. ↩ English version of the idea of a 'Gläserner Mensch' , a data protection/privacy concept about becoming fully transparent/see-through due to all kinds of surveillance. ↩

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ava's blog 1 months ago

a professional online presence?

At times, I think back to how this blog originally was meant to be a place to document tech stuff like a portfolio. Even now, there’s a weak link between work and this blog: As I finish my data protection certificate and talk about whatever moves me in that topic on here, I also volunteer whenever I can by translating court decisions for GDPRhub. It’s something I’m not shy about at work and reference in applications for data protection roles, and my GDPRhub profile links this blog as well. I have wondered sometimes if it’s worth it to bend the knee to norms around work and professionalism and not put my data protection posts where my Hello Kitty Island Adventure guide is, and where literal copies of my notebook are. Not that that includes anything I wouldn’t share at work - I only publish what I feel comfortable saying at work - but still, there is this recurring pressure to draw a clear line, not be too personal, and to clean up the act. There’s also the pressure of choosing the right medium. I’m sure companies love to see enthusiastic LinkedIn posting, and it seems like people only gain a professional reputation in a topic sphere online if they perform for an audience and grow it purposefully. What I mean is: Short form videos on TikTok cramming important and complex topics into a few takes, posting dramatic calls to action on a microblogging platform such as X or Mastodon, or posting YouTube videos with scary thumbnails. It kind of conveys: “ I am always up to date, I put out content as fast as I can, I will cover everything like my own little news show, it’s my main focus on this account, and I care because look how deeply concerned I look on the thumbnail as it says in bold red letters “IT’S ALMOST TOO LATE” ”. Just a blog post every now and then doesn’t convey that. I think a few years ago, that obnoxious approach might have gotten a different reaction. Over the top, dishonest, seeming ‘narcissistic’, unprofessional and scammy. But now that everyone is so in love with online content for marketing and hiring social media managers, suddenly it’s not - now it just shows your creative spirit, persistence, your ability to adapt to the times, make the format work for you and that you know how to play the algorithm. I just have no interest in all that. First, I don’t want to hide my personality online because I bring that exact same personality to work with me, too. Aside from minor code-switching, this is who you get. I don’t have a work-self. Second, I still don’t wanna go back to any of the usual social media platforms. Third, I don’t want to feel like I have to write a post about every recent happening in my field of interest to artificially perform devotion for an invisible audience. I prefer to write about the things that fire me up and that I am passionate about, and it usually involves some kind of problem, something I’m arguing against, some things I feel are missing from the conversation. I have not written about EU ChatControl, despite it basically being the biggest data protection nightmare right now, because what is there to say? It would be mind-numbingly boring to write about because there is no interesting conflict for me, just false hopes, false promises, and no understanding of tech while trying to pass something that would be incompatible with existing law. It’s not even fun disproving any of the arguments because they are all stupid and I can’t even seriously entertain them for one second and we’ve been at this every other year now. There is nothing to explore there. My brain refuses to even invest the energy. But if I was on other platforms, I’d probably have to, reasoning: Because others in the space do it too, or the audience I cultivated on that platform expects me to, or I wanna impress the expert in the field that follows me. Or simply because it’s a big thing, and capitalizing on something impactful is seen not as the disaster it is, but a way to farm engagement and followers. People doing all this can go: “ See, I am an expert and well known person in that field, I grew 100k followers, post every second day, and other known person in the field follows me too, and shares my posts! ”. That works for any topic, not just the intersection of tech and law, and I’m sure it gives some people a lot of street cred in their field even when they lack qualifications. It’s not impossible to build yourself up without these things, but it sure is a hack, a shortcut, a loud and flashy thing. I know who I am, and how much effort and passion I put into emails and real life conversations and work projects that involve data protection - it just becomes an issue when we live in a world that wants you to put things online to prove that they happen. If you were not there to record it and produce a digital track record, did it really happen? It’s not uncommon to get treated like a common idiot who just did an AI search for something by someone who did just that, just because you don’t perform your credentials right. I just want to write about things in a way that is unbound by algorithmic rules, peer pressure, follower retention and timing. No fear-inducing thumbnails, no virtually useless calls to action to drive engagement, no ragebaiting, no cookie-cutter same content strategy, no single-topic accounts to split my interests up. No dragging out the information because I need to make it long enough to reach the monetization threshold. No posting for posting’s sake, no feeling like I have to give some sort of stance or statement to everything, whether just to be one of the accounts people click on when they search a term on socials, or because having a lot of followers convinced me that everyone is just waiting for my position (when they are not). No preaching about how horrible this or that company is while not only being on it, but also making money off of, and for it. That’s why I’m here, on a quaint blog that I don’t promote anywhere and holds a lot of topics. It’s not a space for a personal brand, but it’s genuine. All this makes me feel a tiny twinge of guilt at times, but deep down, I know this is better. Reply via email Published 08 Oct, 2025

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